It's been a while and a lot has happened.
This blog is still all about the Blank Bunch. But, it is re-starting weeks after we lost our son Spencer.
He was born 2/15/2019, after an easy pregnancy our world started to crash.
Spencer was born blue. We thought it was just shock, and he turned pink and let out a cry quickly. But an hour later, in the recovery room the doctors came and asked to take him to the NICU.
No problem we thought. Kenzie had been there a few days when born and then we had been on our way home. The NICU was like a right of passage, not a scary place few people go.
But, we would quickly learn, that was not to be the case this time. This time, the NICU would be the only home our son would ever know.
I won't get into everything, but let's just say his first weeks were endless tests. Always looking for what was causing his low tone, his breathing issues and more.
At a few weeks old we learned Spencer had two different, non related genetic conditions. Conditions that would have altered his life, and our lives, immensely.
The diagnosis meant we needed to grieve. We needed to let go of so much of what we thought our lives with our son would be.
But the worse was yet to come. As we grappled with our new reality, Spencer started to decline. His breathing wasn't steadying. He wasn't improving.
Our reality went from a difficult life for him, but one we would do everything we could to make the best possible. To him having a very short life. One that was ending right before our eyes.
His conditions together and their severity, along with something called a paradoxical vocal cord, proved too much for him.
On Friday, March 29th, at 6 weeks old Spencer passed away in my arms.
He was 43 days old.
It was not enough time. It will never be.
Comments